Showing posts with label dementia. Show all posts
Showing posts with label dementia. Show all posts

Friday, June 07, 2024

Alzheimer's and the Health of Public Officials


Years ago, when covering Massachusetts public schools and the state’s education department for Bay State Parent, a monthly magazine, I had my own run-in when writing about the health of a public official. Instead of it being the governor, or even the president of the United States, it was the Bay State’s education commissioner. Mitchell Chester wielded a lot of power, overseeing the state’s K-12 public schools. 
 

If the teachers’ unions weren’t taking issue with him, it was the parents and others who thought they knew better than he about the best way to educate kids. I interviewed him a few times, and I always found him quite pleasant.

 

In fact, I often thought if the state board of education – to whom he reported – really wanted to sell what the Department was doing – pushing standardized testing, especially Common Core – they should have put on him on the road, doing more public speaking around the Commonwealth. He made a strong case for standardized testing -- “the system needs feedback" -- and he always did it with a smile. He was very engaging.

 

Tragically, back in 2017, he was diagnosed with cancer. The Department didn’t make the news public, but the board of education allowed Chester so much time away from the office they appointed one of the Education Department’s top leaders “acting commissioner.” The appointment and Chester’s health were kept out of the public eye.

 

Then, one Friday afternoon, an incontrovertible source called me. This individual had a lengthy professional history with the Massachusetts Department of Elementary and Secondary Education. They had worked alongside Chester for years and had also served, for many years, on the state’s board of education before retiring. They knew the state’s education Department quite well, and many in the Department fed them documents that weren’t supposed to be seen by the public; this source shared them with me. 

 

They didn’t make the Department look so good, showing that it was being supported, on occasion, financially by the Bill & Melinda Gates Foundation so it could enact certain policies – mostly to do with Common Core – they wouldn’t need to be run by the legislators on Beacon Hill for funding. (Talk about a threat to democracy!)

 

Of course, I wrote about it, and that put me on the Department’s well, let's say, "bad list." Not that I cared, of course. 

 

When I heard about the cancer diagnosis, it was a huge story. The Massachusetts Teachers Association knew something was wrong with him, too. As I recall, they were getting it from their members, plus, likely, the rumor mill. 

 

On Monday, I spoke again with my source. As on Friday, they confirmed their source was someone no one expected -- the acting commissioner. I quizzed the source about details about how the discussion came about and mentioned that this better be true. They swore it was. As for the details about their talk, it was surprising and somewhat comedic.

 

Of course, Bay State Parent’s editor and I were in touch on this issue with many phone calls. We saw this as a huge story that needed to be reported.

 

On Monday morning, I also called the state Education Department’s spokesperson. After we exchanged pleasantries, I asked her about the commissioner’s health, telling her what I knew. She promptly went into a 15-minute tirade, screaming that I was the worst reporter she ever met. I replied, saying the sources were solid and she had until 3 p.m. to provide a statement; otherwise, I said, we would update our website with the story -- as is. 

 

She provided a statement. We had a scoop. The commissioner died three weeks later. 

 

So, if a state education department can be highly defensive about its leader’s health, imagine what the Biden White House is going through. It has lots to lose, so they’re being as protective as possible about the president’s health. I’m not a Joe Biden fan. I’m not a Donald Trump fan. As a voter, I feel like that great social commentator and comedian Tom Lehrer once remarked, a "Christian Scientist with an appendicitis."

 

The WSJ’s story on the president’s health was likely as good and objective as could be expected. They quoted both sides. Could it have been better? I think so. But there’s always an editor – no matter if the media outlet sides with the left or the right – driving their reporters to get the story as quickly as possible.

 

As for Biden’s mental acuity, I’ll say this:  His actions, particularly the way he speaks, are reminiscent of the way my mother was just before she was diagnosed with Alzheimer’s. 

 

It’s important to keep in mind that President Reagan underwent the same scrutiny about his health during his re-election campaign in 1984, which Democrats were all too happy to discuss and push. His first debate appearance against former Vice President Mondale didn’t go so well, and it was thought he was in decline. Reagan acquitted himself in the second one, saying he wasn't about to take advantage of Mondale’s “youth and inexperience.” 

 

It generated several laughs, and Reagan waltzed into victory.

 

Imagine if the Biden campaign did the same.

Thursday, April 01, 2010

My battle with Alzheimer's

The Wall Street Journal had a story about Alzheimer’s Disease earlier this week.  Here’s my account of the situation.

I've been living with Alzheimer's for nearly eight years, when my mother, at 60, was diagnosed with this God-awful disease. I've never experienced anything more emotionally extracting than watching my mother suffer from this terrible condition.

The best reason the doctors could give for her dementia was that she suffered from depression. And while 60 is an early age to be hobbled with Alzheimer's, there are plenty of younger people who are diagnosed.

I met a 43-year-old man with it while touring assisted living facilities. A lawyer told me about a 42-year-old woman who was stricken.

Sure, they're the rarity. 




Stimulating your mind with a book or a game is a fine idea. But if you really want to prevent this, go for a run at least three times a week. Moving the blood around your heart and your head will do more to keep your brain in shape than anything else.

Not that reading is bad. But there's no getting around cardiovascular exercise. Your heart requires it and so does your brain.

Today, at 67, my mother lives in the Alzheimer's unit at an assisted living facility. The attendants bathe and dress her and make sure she eats. The annual cost? About $80,000.00. And it’s all private pay.

The annual tab is paid through her IRA and the money made when we sold her house.  

If you want to know stress, check out what it’s like to watch the stock market take a nosedive, as it did in the final months of 2008, and then wonder how your mother will pay her bills.  

It’s not like she’s employable. 

Add to that the time I agreed to put her on an anti-psychotic drug, Zyprexa. In dementia patients, it’s considered an “FDA-approved black label drug,” meaning death is a possible side effect. 

Every morning, my first thought is, “I killed my mother.”

Alzheimer's is described as the "long, slow, goodbye."

I wish it were faster. My mother's a shell of the lady she was. In her youth, she was vibrant, beautiful, and full of life. Now she's worn down, haggard-looking, 30 pounds overweight, and can't remember my name or anyone else’s. 

The tragedy is that physically she's in pretty good shape. Mentally, she's a vacuum, not remembering words said to her seconds ago.

I pray she dies soon. That’s when her dignity will be restored.

Don't let this disease happen to you. Go for a run three times a week and change your diet. And while you're at it, find a good book to read.

Do something, goddammit!